VT Human Subjects Protection Tutorial
1. Welcome --- 2. Reason for Training --- 3. Importance of Compliance --- 4. History --- 5. Selection of Subjects --- 6. Recruitment --- 7. Consent --- 8. Paying Subjects --- 9. Confidentiality & Anonymity --- 10. Who Regulates Your Research? --- 11. VT IRB Submissions --- 12. Continued Compliance ---QUIZ
9 Protecting Confidentiality & Anonymity
Researchers need to be creative to ensure that the utmost confidentiality or anonymity is provided to their research participants.
Do not collect identifying information from participants unless it is absolutely necessary to the research. If identifying information is collected, keep this information separate from subjects’ responses (e.g., responses to questionnaires/interviews, biological specimens, lab information, etc.). To do so, use a study code/ID to link identifying information to study responses. Keep the document linking study ID with identifying information in a separate locked area and limit access to head researchers.
Identifying information:
- Names
- Addresses
- Employers’ names or addresses
- Relatives’ names or addresses
- Dates (e.g., birthdate, date of death)
- Phone/fax numbers
- Email addresses
- Social Security Number
- Member account numbers
- Voiceprints
- Fingerprints
- Full face photos & comparable images
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